acondroplasia

The Association is a point of reference for people with achondroplasia and their families .

Copyright 2017 @ acondroplasiaonlus.it

All right reserved

Via Valmasino, 8 - 04011

Aprilia (LT)

Italy


facebook
twitter
instagram

#MISSION

OUR HISTORY

Born in October of 2011, the Association "Achondroplasia-growing" non-profit not-for-profit.

 

It is proposed to deal with the problems of Achondroplasia in all its aspects and to pursue exclusively social solidarity aims to all the people acondroplasiche, their family members, and all other forms of syndromes, dysplasia, condroplasie and conditions where there is short stature .

 

The Association, born from the desire of a group of people, acondroplasiche and not, that have decided to meet and discuss the condition of people with achondroplasia and low stature, with the support of this route from relevant actors, such as doctors, orthopedic surgeons, pediatricians, psychologists, pedagogiste, allergologhi, geneticists.

 

Together to grow ....to live 360° the world of the achondroplasia, and bring to the attention of the public opinion through awareness-raising campaigns, the days dedicated to raising funds for research, sports events, meetings in schools, the condition of the people acondroplasiche and/or of low stature.


L' Association, and support:
- parents of children looking into it and spoke, especially in the moment of "Birth defect" and in the developmental age of the child;
- for adolescents and their families;
- for adults, for every need of the common life, from self to self, from the single life to the relationship of the couple and of the genitorialita'.

 

​​THE BOARD OF DIRECTORS

#TEAM

21616396101552879461180713056521886499598799n
10671264102040138938597646319817248566376875n-200x200
23843344102148168417631861317211838539320494n

Mariangela Pizzaballa

NADIA PIVATO

BARTOLOMEO PERROTTA

President and founder of the Association, is a mother of 3 sons, a male with achondroplasia.
 

Since 2011, port forward with extreme passion in the initiatives of the association

Self-confident, sympathetic and a lover of travel, Mariangela from 2015 holds the office of Director.

A woman with achondroplasia, her condition was not ever cause limiting in any field.

Attentive father of 2 sons, of which one with achondroplasia, from 2013 he is Vice-President of the Association.

And' the official photographer of all our events.

 

​​Legal assistance

#LEGAL

Attorney Daniel Zega care of the legal aspects to ensure respect of your rights.

cell. 392.3546626
e-mail : danielezega@libero.it

Receives:
 
Pomezia (RM)
Guidonia (RM)
Genova (GE)

 

The scientific committee on

#science

download1
download
IMG1820

Dr. Rossella Capolino

Dr. ANDREA BARTULI

Dr. Antonio Memeo

RESPONSIBLE FOR THE OPERATIONAL UNIT RARE DISEASES OSP. PED. CHILD JESUS OF ROME

Director of Complex Structure, Orthopedics and Traumatology Pediatric ASST G. Pini, Milan

Pediatrician, Geneticist, c/o Ospedale Ped. Child Jesus of Rome

maxresdefault
14005612787423420
download2
Dr. Leonardo Oggiano
Dr. Fabio Verdoni
Dr. Osvaldo Palmacci 

Orthopedics Hospital Ped. Child Jesus of Rome - Palidoro

(specialized in the treatment of the column)

Director, Orthopedics and Traumatology Lengthening external fixation (AFE) Galeazzi Hospital

Medical director, UOC ortopedia - Hospital Ped. Child Jesus of Rome -Palidoro

(specialized in the elongation of the limbs)

PaoloPalma2
download3
4436267110217455771894790256094679223762944n
dr. Giovanni carlo de vincentiis

Dr. gianluca piatelli

Dr. paul palma

Medical director at UO Neurosurgery

The Hospital Ped. Child Jesus of Rome

Home Gianicolo

Neurosurgeon Hospital Giannina Gaslini of Genoa

Responsible Dipartipento ENT

Ospedale Pediatrico Bambino Gesu' of Rome, Palidoro

4219638618493276284669507930576748930924544o2
download4

Dr. paul palma

Dr. carmine September

Researcher Telethon c/o Tigem naples.

Medical director at UO Neurosurgery

The Hospital Ped. Child Jesus of Rome

Home Gianicolo

Create a website